FISH

SMALL SUPERNUMERARY MARKER CHROMOSOMES

-  sSMC -

FOR PATIENTS

 

 

 => patient support groups related to sSMC

 

Partner of Dr. Liehr's lab:

UNIQUE = rare chromosome disorder support group: http://www.rarechromo.org/
Email:
Helpline: +44 (0) 1883 330766
Address: PO Box 2189, Caterham, Surrey, CR3 5GN, United Kingdom


 

Other support groups for genetic disorders

CONTACT a family - for families with disabled children: http://www.cafamily.org.uk/rda-uk.html

LEONA - Verein für Eltern chromosomal geschädigter Kinder e.V. (German site): http://www.leona-ev.de/

Living with Trisomy: http://www.coehs.siu.edu/tris or http://www.LivingWithTrisomy.org

Valentin APAC: http://www.valentin-apac.org

Unique Danmark: http://www.uniquedanmark.dk

Chromosome Disorder Outreach (CDO): http://www.chromodisorder.org


 

sSMC 9-related support groups

9TIPS Trisomy 9 International Parent Support:
http://www.trisomy9.org/9tips.htm or http://health.groups.yahoo.com/group/9tips/

Trisomy 9: http://www.trisomy9.org


 

sSMC 12-related support groups

PKS Kids: www.pkskids.net and www.pkskids.ning.com

PKS Support Online: http://www.pksonline.org

PK Syndrome Online: http://www.pk-syndrome.org

Pallister-Killian Syndrome; Real Cases - some stories of PKS children: http://www.pk-syndrome.org/cases.htm


 

sSMC 15- and UPD 15-related support groups

IDEAS: http://www.dup15q.org

idic15-EU: http://health.groups.yahoo.com/group/idic15eu

Nonsolo15: http://www.idic15.it

Prader-Willi-Syndrom-Vereinigung (PWSV) Deutschland e.V. (German site): http://www.prader-willi.de

Prader-Willi-Syndrome in Romania (Romanian site and English translation):
http://www.apwromania.ro
  or http://apwromania.ro/index_en.php 


 

sSMC 16-related support groups

DOC16; Disorders of chromosome 16: http://www.trisomy16.org


 

sSMC 17-related support groups

familyofchromosome17disorders: http://health.groups.yahoo.com/group/familyofchromosome17disorders

Dup-17p11-2, 17p11.2 Duplication: http://health.groups.yahoo.com/group/Dup-17p11-2

chromo17europe: http://www.chromo17europe.webs.com 


 

sSMC 18-related support groups

Chromosome 18 registry & research society: http://www.chromosome18.org

Chromosome 18 Registry & Research Society (Europe): www.chromosome18eur.org

Tetrasomy18p.ca: http://www.tetrasomy18p.ca

Tetrasomy18p: http://health.groups.yahoo.com/group/tetrasomy18p/


 

sSMC 21-related support groups

International Mosaic Down Syndrome Association http://imdsa.com


 

sSMC 22-related support groups

Chromosome 22 Central - C22C; Chromosome 22 related disorders http://www.c22c.org/

KIDS-22q11 e.V. (German site): http://www.kids-22q11.de/

Ring22: http://health.groups.yahoo.com/group/ring22/


 

sSMC X and Y-related support groups

Turner Syndrome Support Society (UK): http://www.tss.org.uk/